Parenting is hard. When you're chronically ill it throws even more complications into the mix. I recently spoke with some chronic moms about what it's like to parent when you're sick. The consensus: It's tough! But....think about all the good you can teach your child. You have a unique perspective and can be a real … Continue reading Chronically Ill Parenting: 25 Tips from real life moms
I recently asked for help. Help from other chronically ill moms on how to handle this whole sick parenting thing. How can I take care of my kids on the days I can barely take care of myself? I got a lot of wonderful suggestions and feedback. Here are some tips from some real life … Continue reading Self Care for the chronically Ill : 10 Tips
Thank you so much to Mackenzie's Mission for putting together this Faces of Amyloidosis video and for including me in it. Spreading awareness of this rare disease is crucial because it leads to earlier diagnosis which leads to saving lives. Once thought to be the disease of elderly men, a diagnosis of Amyloidosis is becoming … Continue reading Faces of Amyloidosis
This Sunday, June 17 2018 my husband and I will join the Journey to Conquer Cancer 5 km walk in support of Princess Margaret Cancer Centre. Over the two years I have spent at Princess Margaret I have been met with nothing but kindness and compassion. The dedication and hard work of the staff has … Continue reading Journey to Conquer Cancer
Over the past few weeks I have had people reach out to me who have either just received a diagnosis of Amyloidosis, or who are in the process of being tested. Each of these people has expressed that they hesitated to contact me. Please don't hesitate to contact me! My main reason for starting this … Continue reading Let’s Chat!
I must say I was completely shocked when I heard of the end of the trial for NEO. Others I have talked to (people definitely more knowledgeable than I in the field of amyloids) had a feeling it was coming. I was convinced that this antibody was going to do wonders for the field of … Continue reading The End Of NEOD001
When I first heard that I was going to have chemotherapy I pictured one drug, one very strong drug that was used to treat cancer. I envisioned myself bald and extremely sick with side effects. I was quick to learn that this was not the case for me. As I have come to understand it, … Continue reading CyborD and Me